Lack of medication hampers treatment ofplastic bracelets for events patients with rare diseasesRubber Band Bracelets Anyone who was in Denver is aware of the chaos and sheer terror that radiated from Littleton that day. I was on my way to meet a co-employee for lunch. She worked just blocks from Columbine. Police vehicles sped past, lights on and sirens blaring, at no significantly less than 60 miles an hour. Straight down Wadsworth, a main road connecting most of the metro spot cities in Denver, the police autos came. And then some much more. And then even far more. I could almost hear the calamity from where I was. Thanksgiving Day is celebrated on the 4th Thursday every single November. It is typically a household & pals day, then sharing the issues you"ve been thankful for the yr. Wristbands can come into play as effectively on this particular day by offering your loved ones some custom silicone wristbands that says "Thank you" or "Thank you God, I"m grateful", and you bet to see the smiles on their faces. These bands are also wonderful giveaways for private occasions like birthdays, and even as a brilliant style accessory. These bands are even worn by folks of all ages. If you have an occasion like a young children"s charity, then you can even give these bands away as a promotion about your charity. You may even have an organization and can give these bands away as a token along with the primary merchandise or service you provide.
High cost of drugs and serious long-term problems often result in large numbers falling into poverty, according to experts. Wang Xiaodong reports.
For the past three years, Liang Fen has set out on the 1,600-kilometer rail journey from Hengyang, Hunan province, to Beijing every quarter to pick up an icebox from a black market dealer.
Once the deal is concluded, she quickly returns home with the box, which contains a precious drug that means she will not have to worry about her 5-year-old son for the next three months.
The drug is a generic version of Cerezyme, a patented medication used to treat Gaucher disease, a rare illness whose symptoms include short stature, liver swelling and osteoporosis, aka "brittle bone disease".
Each dose of the drug, which is manufactured overseas, costs Liang about 12,000 yuan ($1,700). That"s less than half the price of Cerezyme, developed by the French pharmaceutical company Sanofi, but the unbranded medication is almost as effective, according to Liang.
"Even the generic drug is too expensive for us, so I can only give my son the smallest amount necessary to keep him alive," she said.
She declined to disclose further details about the drug, including her source, because its sale and use have not been formally approved by Chinese authorities.
In recent years, Liang has maintained close contact with officials from Hunan"s Healthcare Security Administration in the hope that Cerezyme will be included in the province"s basic medical insurance program and she would be reimbursed for her outlay.
Currently, only a few provinces, including Zhejiang and Shanxi, have included Cerezyme in their medical insurance programs. However, Liang"s hopes have been raised by news that a number of provinces, including Hunan, may include the drug in their programs by the end of the year.rubber jelly bracelets meaningssmall silicone wristbandsafrican rubber braceletscool rubber braceletspersonalized awareness bracelets